- A short history
- The hidden catastrophe
- A view at the disabled child
- Focus points of the Liliance Foundation
- Personalized, small-scaled and direct help
- The essence of the assistance
Personalized, small-scaled and direct help
Working method and nature of the aid
The Liliane Foundation aid
- is personalized, small-scaled and direct;
- applies to the indivdual needs of that one special child from the view point of the personal development of the child. Medical and social aspects play a role here;
- is in practice made possible through the co-operation of a world-wide network ofvolunteer contact people,called mediators, that take the personal responsibility for thechild's rehabilitation;
- makes use of local facilities and supplies, the nearest hospital or rehabilitation centre,the nearest school or job training possibility, locally manufactured aids and appliances
Objective
The help is aimed for disabled children in the developing countries of Africa, and South America. Children who live at home. Children, whose parents are not in the financial position to pay the total cost for their child's rehabilitation. Children who do not have access to institutional care, or, who for different reanons, are not reached by the institutional care workers. Children who seldom go to school. Children who are socially isolated.
Working method
The Liliane Foundation works together with local contact people, the mediators, who form the important link between the Liliane Foundation and the disabled children in developing countries. They form the direct line to the children andtheir families. By working together with the parents, the child, and the Liliane Foundation, the mediators are in the position to offer the actual, direct help in practice.
The Liliane Fondation Mediators
- belong to a religious congregation or Non Governmental Organization, are mostly professionals in social relatid services and personally take on the responsibility as a mediator
- are volunteers who work with heart and soul for disabled children in their area;
- are people who live and work in the area of the child;
- visit the child's family home;
- know (or search for) the closest and most reliable referral possibilities for medical and social rehabilitation;
- are men and women with different backgrounds, nationalities and religions;
- are not always trained as rehabilitation experts, but they are motivated to gain moreknowledge in this field.
The role of the mediator
A disabledchild does benefit from all the material help offered, but care and attention play much larger role in their lives. The Liliane Foundation looks to the aspirations and pssibilities of each individual child and goes all out to help "that one special child". From case to case the offer for rehabilitation differs, becarse for every child the circumstances are always different. In the realization of the Liliane Foundation objective-personalized and small- scaled help for individual children- the mediator plays a crucial role.
Point of support
Mediators take on the task and responsibility for the medical and socialrehabilitation of desabled children in their area. They voluntarily form the direct line between the Liliane Foundation and the children. The mediators integrate the special care for disabled children, daily into their field work. For the parents and the child, they fulfil a supporting role on the practical side and also for the morale The parents remain responsible for the child, themediator is their point of support.The parents work together towards the rehabilitation of their child because of their personal stake. They offer the support, motivation, contribution in kind and, if possible, a financial contribution toward the costs.
Personalized
The mediators develop together with the child and the parents or guardians, an individual and integral integral rehabilitation plan for the child. For medical care (operations, visits tospecialists, physiotherapy, braces, crutches, hearing aids,aids and applianes to learn to walk, sit or stand) they go to the closest supplier or facility. To bring the disabled child into a position of self sufficiency to earn their own living , the mediator looks for schools and job training possibilities in the nearby areas. For small-scaled income generation projects, the mediatorconsiders the local economic possibilties.
Communication and reporting
Mediators have direct contact with their personal correspondent at the Liliane Foundation office in the Netherlands. Together, they look to the full development possibilities of, and for, each disabled child. The Liliane Foundation places alot of value on the communication with the mediators and will offer all it's support to them. Them mediator reports regularly on the progress of the child and also accounts for the costs and finaces. Via a Newsletter, the Liliane Foundation declares the figures of the finaccial assistance from the donators. The personal data of every child helped, is registered in the administration records, noting the disability and the costs incurred for the assistance. Photos of the children, before and after the rehabilitation, are of great interest for the fund raising activities of the Liliane Foundation. The financial annual report from the Liliane Foundation, is audited yearly, by a recognized chartered accountant.
Follow-up
An important role for the mediator is the follow-up. The mediator closely the lives of the child and the parents, in order to further the integration of the child, to maintain the adaptability of the aids and appliances in the child's growing years; and to find the suitable school or job training possibility. The mdiatorand the people in the area give the child the motivating support that he, or she, so badly needs.
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